Sickle cell disease (SCD) affects approximately 100,000 Americans, predominantly those of African descent. The inherited blood disorder may cause acute pain episodes, infection and other serious health problems that can affect every organ in the body.
To optimize health outcomes, national guidelines recommend routine follow-up appointments every six months, and more frequently for patients on specific therapies or experiencing complications. Yet, a 2019 national study showed that a majority of patients, both children and adults, miss clinic appointments. This means that a majority of patients with SCD may miss out on therapies that have the potential to improve their health and quality of life.
To better understand what’s behind the high rate of missed appointments, NICHQ conducted a series of interviews with patients and providers. Now, we’re inviting all SCD stakeholders—health professionals, service providers, patients, and families—to join NICHQ for a live-webinar where we’ll share our findings and facilitate a discussion on change strategies:
This webinar will: